In collaboration with the American College of Cardiology (ACC), Evidation has launched a nationwide initiative focusing on the lived experience of individuals with heart failure beyond the clinic walls, to understand their particular needs and sources of value which could improve engagement and outcomes.
Over 1000 people with heart failure and other chronic conditions (as of April 2021) from across 48 states and the District of Columbia have agreed to participate, recruited in less than 1 month from Evidation’s Achievement app.
Person-Generated Health Data
PGHD allows us to understand the heart failure lived experience outside the clinic for a wider population, and allows individuals to tell their own story.
Through PGHD, we can identify individuals who could benefit from engagement and nudge them towards evidence supported actions.
We can identify individuals with heart failure that are not being managed well and engage them via digital tools, ultimately improving health outcomes.
As of May 25, 2021
474 heart failure participants from across the United States joined the study, representing 48/50 states and a 80:20 mix of urban and rural.
Participants shared up to 5 years of retrospective wearable data, in many cases covering their entire Heart Failure journey: pre-diagnosis, diagnosis, hospitalizations and medication changes, as well as current symptoms and trajectories.
We observe high levels of device usage across demographic, socio-economic and ethnic groups.
76% of participants reported being aware of their symptoms prior to diagnosis, and 25% for months or years before their diagnosis. 61% participants have a connected wearable device, of which 9% participants shared dense (no more than 4 consecutive missing days, no more than 15 days missing in a month) wearable data covering their entire journey all the way to diagnosis.
89% of participants had been hospitalized at least once, and 24% participants shared dense (no more than 4 consecutive missing days, no more than 15 days missing in a month) wearable data covering their most recent hospitalization.
11-13% report not regularly taking any medications for their HF, and of those that are, 53% participants reported feeling no change or worsening symptoms since last medication change.